Our First TSC Conference

I am so thankful for today.  We went to an all day TSC conference at UCLA, which is a long two-and-a-half hour drive from our house.  I am completely mentally and emotionally exhausted right now.  I am even typing half-blind because my eyes just couldn't stand my contacts any more.  I am completely ready for bed, and headed there as soon as I'm done typing this post, but I needed to write this before my head hit the pillow.

We heard so much great information today shared by some of the leading doctors and researchers in the field.  It was so much, I hope I can retain everything.  We met some other parents who have children with TSC, amazing parents who were so open to sharing what they have learned along this long journey.  For that I am thankful.  We were protected from an accident on wet roads as we left UCLA.  It was obvious that God put a buffer around our car as a speeding SUV lost control directly behind us and fishtailed within feet of our front bumper.  How that car managed to come in front of us before fishtailing instead of sideswiping us was only by God's hand.  Isaac and I went out to dinner on our way home.  A much needed date that had been a long time coming.  But the best part of today was that three other people were there for Joel (and any other future clients they may have with TSC, which I would highly recommend this company to other local families - email me and I'll give you their info).  Two are his new ABA therapists and one hopefully will be soon.  How incredible to have a large part of our team there, learning the intricacies of TSC.  Tuberous Sclerosis is such a complex disorder and I know it will be so helpful to Joel for the team working with him to understand more about this condition.  I can not even put into words how thankful we are that they were there, how thankful we are for this company that truly cares about Joel and our family, and how thankful we are for the incredible individuals that make up this company.

We are feeling very cared about and supported as we venture into this next stage of life.  We are blessed.

With love and thankfulness,
Joel's Mom